Beautiful Wood Plaque given to Our Family by Our Friend Ben Rogers on April 10th, 2011.
The Story of our Beloved Kim (May 30, 1991 - March 31, 2011) and Her Battle with AML Leukemia
Wednesday, April 13, 2011
Dear, Loved Friends-
I am not quite ready to express myself to you. But I will. This blog will be here for as long as I am allowed to keep it, and I hope to, from time to time, continue to add a thoughts and experiences about Kim. For now, I have a message from my dad that he would like to share.
I can never thank you enough, for all you have done. And be warned- I plan to ask you for more. But not today.
Always, Love, Emily
From David:
As I was talking to Ben Rogers this Sunday afternoon in our home, a correlation between Kim’s suffering and early Mormon Pioneers come to mind.
It seems cruel that people have to go through pain and suffering, especially people who are doing everything the best they can; they don’t seem to deserve such a hard life. But as is taught by our prophets, our trials in life are a process we mortals go through to become more compassionate, learn patience, and become more perfected -even more like Christ.
As the Mormon Pioneers had to suffer physical pain, endurance and even death in many cases, they didn’t complain. Modern day people who learn of the Pioneer history often complain against God, wondering why He would let such a cruel thing happen to His chosen people. But you don’t see journal entries of these people complaining of their experience; it was a blessing to them. They were given spiritual blessings and strengths we don’t understand. These harsh experiences helped sanctify these people so they were worthy of God’s greatest blessings in heaven.
The Lord told the Prophet Joseph Smith in the Liberty jail that his trials, if endured well, would exalt him on high. These pioneer experiences are recorded in history for others to benefit from. The ground that these people lost their lives on, such as Martin’s Cove, for example, is hallowed ground. Modern-day treks bring these stories and experiences to life for many youth groups for whom the spirit is felt and conversions to the gospel are made.
So it is with Kim. She suffered in her battle with AML leukemia, months of hospital stays, 8 rounds of chemo therapy -each one bringing on life threatening side effects and untold pain. She bore these “well” as the Lord told the Prophet Joseph to do. Kim’s undaunted spirit, courage and positive attitude won her the love and respect of all who knew her and cared for her. Her circle of friends and admirers exploded to include many more people than she would ever imagine. These events were recorded by her sister Emily and made public to the world through the modern day miracle of the blog. As her father, I’m totally amazed at the volume of people who expressed their admiration of Kim and her great example of positive attitude and adherence to the Savior’s Gospel.
So, just as the Pioneers were perfected in the “refiner’s fire” with their trials, Kim was as well, with her trials. Kim illuminated to her best when she was under adversity, both in earlier life experiences, such as her training for track, or in her battle with cancer. She was particularly amazing in the later. She was truly magnificent. This experience, I’m certain has refined her spirit to the point that she had learned all she needed to graduate to the next level in the plan of salvation. She now has another calling and I’m sure is running at her best to do it with perfection. Her trials and example has made and will continue to make me a better person.
I am not quite ready to express myself to you. But I will. This blog will be here for as long as I am allowed to keep it, and I hope to, from time to time, continue to add a thoughts and experiences about Kim. For now, I have a message from my dad that he would like to share.
I can never thank you enough, for all you have done. And be warned- I plan to ask you for more. But not today.
Always, Love, Emily
From David:
As I was talking to Ben Rogers this Sunday afternoon in our home, a correlation between Kim’s suffering and early Mormon Pioneers come to mind.
It seems cruel that people have to go through pain and suffering, especially people who are doing everything the best they can; they don’t seem to deserve such a hard life. But as is taught by our prophets, our trials in life are a process we mortals go through to become more compassionate, learn patience, and become more perfected -even more like Christ.
As the Mormon Pioneers had to suffer physical pain, endurance and even death in many cases, they didn’t complain. Modern day people who learn of the Pioneer history often complain against God, wondering why He would let such a cruel thing happen to His chosen people. But you don’t see journal entries of these people complaining of their experience; it was a blessing to them. They were given spiritual blessings and strengths we don’t understand. These harsh experiences helped sanctify these people so they were worthy of God’s greatest blessings in heaven.
The Lord told the Prophet Joseph Smith in the Liberty jail that his trials, if endured well, would exalt him on high. These pioneer experiences are recorded in history for others to benefit from. The ground that these people lost their lives on, such as Martin’s Cove, for example, is hallowed ground. Modern-day treks bring these stories and experiences to life for many youth groups for whom the spirit is felt and conversions to the gospel are made.
So it is with Kim. She suffered in her battle with AML leukemia, months of hospital stays, 8 rounds of chemo therapy -each one bringing on life threatening side effects and untold pain. She bore these “well” as the Lord told the Prophet Joseph to do. Kim’s undaunted spirit, courage and positive attitude won her the love and respect of all who knew her and cared for her. Her circle of friends and admirers exploded to include many more people than she would ever imagine. These events were recorded by her sister Emily and made public to the world through the modern day miracle of the blog. As her father, I’m totally amazed at the volume of people who expressed their admiration of Kim and her great example of positive attitude and adherence to the Savior’s Gospel.
So, just as the Pioneers were perfected in the “refiner’s fire” with their trials, Kim was as well, with her trials. Kim illuminated to her best when she was under adversity, both in earlier life experiences, such as her training for track, or in her battle with cancer. She was particularly amazing in the later. She was truly magnificent. This experience, I’m certain has refined her spirit to the point that she had learned all she needed to graduate to the next level in the plan of salvation. She now has another calling and I’m sure is running at her best to do it with perfection. Her trials and example has made and will continue to make me a better person.
Wednesday, April 6, 2011
Memorial Fund
We have created a memorial fund for Kimberly at the USU Community Credit Union. I know many of you have been asking about this, so we finally have it taken care of. You can call or visit any branch, and ask for the Kimberly Nelson Donation Fund, and they will be able to help you.
As a side note, we are still planning to represent Kim at the Relay for Life event on April 15th.
As a side note, we are still planning to represent Kim at the Relay for Life event on April 15th.
Accommodations
For those of you who are coming from out of town for the funeral, a dear friend of ours and Kim's, Mary Goodlad, has arranged for discounted rates at the hotel she works at.
Comfort in is located at 25 West 400 North in Logan, and if you call her to make your reservation, the cost is only $35 for one night. Her phone number is 435-752-3261.
Thank you, Mary.
Comfort in is located at 25 West 400 North in Logan, and if you call her to make your reservation, the cost is only $35 for one night. Her phone number is 435-752-3261.
Thank you, Mary.
Friday, April 1, 2011
Kimberly Nelson passed away Thursday, March 31st, at the Primary Children’s Medical Center in Salt Lake City, Utah, due to complications in a long and brave battle against Leukemia.
Our beloved Kimberly is the Jewel of our hearts. She was born May 30th, 1991, to her parents, David and Julie Nelson, and her eagerly awaiting older siblings, Emily and Michael, of Logan, Utah.
Despite health conditions that may have held her back, Kim has always been full of life, energy, an unbeatable determination to accomplish whatever goal she set for herself, and an undying love for everyone in her life. Her positive attitude has always lifted those around her, and her desire to make others laugh, even at her own expense, never ended.
Kim has always been a tremendous example to those around her. She inspires others to strive to be better, and her desire in life has been to help them along the way. Her unshakable testimony of the Gospel of Jesus Christ is undeniable to anyone who knows her. She doesn’t just believe, her entire life has been proof of her belief. The shining light within her has made the world a brighter place.
Kimberly comes from an incredible family and legacy. Her parents, sister, and brother, Grandparents Keith E. (deceased) and Mary Beth Nelson, of Logan, Utah, and Joseph D. (Deceased) and Loleta Marie Tanner of Lyman, Wyoming, Aunts, Uncles, Cousins, Best Friends, and countless other loved ones’ lives were brightened for having known Kim.
The funeral in her honor will be held on Saturday, the 9th of April, at noon, with a viewing from 10:30 to 11:30 that morning, at the Logan 15th Ward building, 125 West 600 North in Logan, Utah. A viewing will be held Friday evening, the 8th of April, from 6:00 until 8:00, at the Nelson Funeral Home, 150 East 400 North, Logan, Utah.
Our beloved Kimberly is the Jewel of our hearts. She was born May 30th, 1991, to her parents, David and Julie Nelson, and her eagerly awaiting older siblings, Emily and Michael, of Logan, Utah.
Despite health conditions that may have held her back, Kim has always been full of life, energy, an unbeatable determination to accomplish whatever goal she set for herself, and an undying love for everyone in her life. Her positive attitude has always lifted those around her, and her desire to make others laugh, even at her own expense, never ended.
Kim has always been a tremendous example to those around her. She inspires others to strive to be better, and her desire in life has been to help them along the way. Her unshakable testimony of the Gospel of Jesus Christ is undeniable to anyone who knows her. She doesn’t just believe, her entire life has been proof of her belief. The shining light within her has made the world a brighter place.
Kimberly comes from an incredible family and legacy. Her parents, sister, and brother, Grandparents Keith E. (deceased) and Mary Beth Nelson, of Logan, Utah, and Joseph D. (Deceased) and Loleta Marie Tanner of Lyman, Wyoming, Aunts, Uncles, Cousins, Best Friends, and countless other loved ones’ lives were brightened for having known Kim.
The funeral in her honor will be held on Saturday, the 9th of April, at noon, with a viewing from 10:30 to 11:30 that morning, at the Logan 15th Ward building, 125 West 600 North in Logan, Utah. A viewing will be held Friday evening, the 8th of April, from 6:00 until 8:00, at the Nelson Funeral Home, 150 East 400 North, Logan, Utah.
Dear Family and Friends,
Kim passed away last night at 7:48 pm. She slipped into a coma while napping at eight o'clock that morning. It was caused by hemorrhaging in her brain brought on by the infection in her blood, and her weak physical state.
Kim was laughing and happy all of Wednesday, herself all through the night and that morning. She never felt pain, or any struggle. She was surrounded by loved ones all that day, and Dad, Mom, Mike and I were with her the whole time.
The funeral will probably be Monday, at our Family's Stake center. Nelson Funeral Home is handling the arrangements. I will have more details later today.
This has been just as spiritual as it has been sad for our family. We can still feel Kim's love, and we can't begrudge Heavenly Father one of his very best angels.
For now, we just need your prayers. If any of you would like to help dad and mom out with the funeral costs, I know that would be greatly appreciated... we hadn't made any arrangements that way.
Thank you all so much, for all you have done for us. I'm so sorry, that it will be a while before you get to see Kim again, but just remember- she's still with us, and always will be. She'll always be there, encouraging all of us to be our best, and Keep Running, just as she always has.
I will write again tonight with more details.
Love Always,
Emily
Kim passed away last night at 7:48 pm. She slipped into a coma while napping at eight o'clock that morning. It was caused by hemorrhaging in her brain brought on by the infection in her blood, and her weak physical state.
Kim was laughing and happy all of Wednesday, herself all through the night and that morning. She never felt pain, or any struggle. She was surrounded by loved ones all that day, and Dad, Mom, Mike and I were with her the whole time.
The funeral will probably be Monday, at our Family's Stake center. Nelson Funeral Home is handling the arrangements. I will have more details later today.
This has been just as spiritual as it has been sad for our family. We can still feel Kim's love, and we can't begrudge Heavenly Father one of his very best angels.
For now, we just need your prayers. If any of you would like to help dad and mom out with the funeral costs, I know that would be greatly appreciated... we hadn't made any arrangements that way.
Thank you all so much, for all you have done for us. I'm so sorry, that it will be a while before you get to see Kim again, but just remember- she's still with us, and always will be. She'll always be there, encouraging all of us to be our best, and Keep Running, just as she always has.
I will write again tonight with more details.
Love Always,
Emily
Thursday, March 31, 2011
Wednesday, March 30, 2011
Sorry for the long break everyone... I've had a really tired few days. Kim is doing okay, but not any better than she was the last time I posted. Still has the infection, still no PICC line, so still on an IV they move every day or three, when her vein starts going bad. Still having fevers, still throwing up. Still no blood counts.
Yesterday, though, Dr Barnette, her primary, told mom and Kim that they think the last round of chemo that she had might have killed off her marrow, and if so, she'll never get blood counts back, and so will probably never get over the infection- without the bone marrow transplant. Though it will be risky to move ahead while she still has the infection, they might have to. They are going to do one more bone marrow test, during which they will also extract a small piece of her hip bone, for one more check, before they decide what to do for sure. That will probably be a week from today.
Aside from that... as I said, things haven't really changed much. We are still worried about Kim, but keeping optimistic (just don't talk to mom.) I am very glad to see that many of you have signed up for relay for life! Just two more weeks! And we had our first donation- special thanks to the Kent Family!
It will be okay. Thank you ALL- Love, Emily
Yesterday, though, Dr Barnette, her primary, told mom and Kim that they think the last round of chemo that she had might have killed off her marrow, and if so, she'll never get blood counts back, and so will probably never get over the infection- without the bone marrow transplant. Though it will be risky to move ahead while she still has the infection, they might have to. They are going to do one more bone marrow test, during which they will also extract a small piece of her hip bone, for one more check, before they decide what to do for sure. That will probably be a week from today.
Aside from that... as I said, things haven't really changed much. We are still worried about Kim, but keeping optimistic (just don't talk to mom.) I am very glad to see that many of you have signed up for relay for life! Just two more weeks! And we had our first donation- special thanks to the Kent Family!
It will be okay. Thank you ALL- Love, Emily
Wednesday, March 23, 2011
Kim is still battling that infection. She's had a fever most of the day, so they've completely stopped talking about giving her a PICC line. It seems like steps backwards, doesn't it?
We need her body to start growing back blood, so that she can fight this off and move on.
Mike's birthday is this Friday, and we're probably all going to spend the weekend in Salt Lake.
I haven't really been doing much for Relay for Life- but it is coming up soon. Just a couple more weeks.
Thanks, everyone. We love you.
We need her body to start growing back blood, so that she can fight this off and move on.
Mike's birthday is this Friday, and we're probably all going to spend the weekend in Salt Lake.
I haven't really been doing much for Relay for Life- but it is coming up soon. Just a couple more weeks.
Thanks, everyone. We love you.
Monday, March 21, 2011
No PICC line today- they are still finding yeast in her blood cultures - it will be at least a couple more days of IVs. (It takes a few days of peatry dish time before these things grow- so, if it's gone now, we still have to wait until nothing grows from her blood.)
Other than that, doing okay. She only threw up once today. And our grandma Marie came to visit! And so did Uncle Larry and Aunt Dianna. And Larry probably doesn't have cancer at all! So, in many ways, today was very wonderful, too. Thank you!!
Other than that, doing okay. She only threw up once today. And our grandma Marie came to visit! And so did Uncle Larry and Aunt Dianna. And Larry probably doesn't have cancer at all! So, in many ways, today was very wonderful, too. Thank you!!
Sunday, March 20, 2011
Hi Friends!
Today was beautiful. The days since Mike has been home have been quite hectic, and we haven't really had much time to spend with just the five of us. Five? It's surreal having a whole family again, even if it was just for a few hours today.
Kim has been gradually doing better- her kidneys are functioning, her fevers have come down, and she's gradually being taken off of one medication at a time. They feel that the infection in her blood is gone, taken care of with the removal of her central line, and anti-fungal and antibiotic medications. The plan is to place a PICC line in her arm tomorrow- she's still living with IVs in both arms. The PICC line, rather than placing another central line, as they will have to eventually, is just a step. She still has virtually no blood counts, and would have a difficult time recovering from the more intense procedure that the central line would need. We're just looking forward to no more IVs! Though they have them placed in her wrists rather than hands now, they are still quite painful for her.
There hasn't been any talk as to her transplant, starting another round, or coming home. Everything has been put on hold as they've been trying to get her stable again. It looks like we're finally getting there- and thank goodness, it didn't take a trip to PICU this time!
There is yet another bone marrow aspirate (test) planned for later this week. Though she's had two already, they really aren't a good indication until she starts to produce marrow again, which she hasn't, yet. Then they'll know if the leukemia is growing back as well.
Things take much longer now, than they used to. Kim's body is at its breaking point- and it's scary to think that she still has a ways to go, and the transplant will be harder than anything she's done yet. But she's still Our Kim, and as always- she keeps running!
Thank you for being the wind beneath our wings.
Emily
Today was beautiful. The days since Mike has been home have been quite hectic, and we haven't really had much time to spend with just the five of us. Five? It's surreal having a whole family again, even if it was just for a few hours today.
Kim has been gradually doing better- her kidneys are functioning, her fevers have come down, and she's gradually being taken off of one medication at a time. They feel that the infection in her blood is gone, taken care of with the removal of her central line, and anti-fungal and antibiotic medications. The plan is to place a PICC line in her arm tomorrow- she's still living with IVs in both arms. The PICC line, rather than placing another central line, as they will have to eventually, is just a step. She still has virtually no blood counts, and would have a difficult time recovering from the more intense procedure that the central line would need. We're just looking forward to no more IVs! Though they have them placed in her wrists rather than hands now, they are still quite painful for her.
There hasn't been any talk as to her transplant, starting another round, or coming home. Everything has been put on hold as they've been trying to get her stable again. It looks like we're finally getting there- and thank goodness, it didn't take a trip to PICU this time!
There is yet another bone marrow aspirate (test) planned for later this week. Though she's had two already, they really aren't a good indication until she starts to produce marrow again, which she hasn't, yet. Then they'll know if the leukemia is growing back as well.
Things take much longer now, than they used to. Kim's body is at its breaking point- and it's scary to think that she still has a ways to go, and the transplant will be harder than anything she's done yet. But she's still Our Kim, and as always- she keeps running!
Thank you for being the wind beneath our wings.
Emily
Tuesday, March 15, 2011
Hi my dear friends,
I just wanted you to know that Kim is doing well. Not much has changed, but in small ways she is doing better. They've taken her off of one of her antibiotics, and are slowly decreasing the amount of fluids they give her, which means her kidneys are starting to function just a little bit better. She is still making do with IVs in her hands/arms, because they haven't wanted to risk the infection that an internal line might cause.
I just wanted to thank all of you again for all of the support you've been giving her. It's just as hard as it's ever been- even harder, in ways, and we always need you more than ever. Thank you.
To the McDonalds- thanks for the Irish Luck basket! The green decorations have been fun for the holiday!
To the McClungs- Thanks as always for your adorable packages! They're always winners.
To the Nolans and Rawlinsons- thank you for always posting your support.
To Melissa- thank you, dear, for spending the weekend with Kim so mom, dad and I could pay attention to Mike. It was hard leaving her, but I know you took good care of her.
Ah, you know how individual thanks are- of course I'm going to leave people out. But I love you all, so much, for what you've been doing for my family. Thank YOU!
And hey- those new wristbands will work great for St. Patrick's Day!
Oh- one more side note. These late posts are almost always done as I'm falling asleep, and usually from my phone. After the first paragraph, it doesn't automatically keep up with where I am typing- so I make a lot of errors. I decided long ago not to let it bother me- and even though I usually notice as I'm posting it... I tend to just let it go. Maybe some day I'll go through and edit them. Until then- I know you love me anyway!
Goodnight! Love, Emily
I just wanted you to know that Kim is doing well. Not much has changed, but in small ways she is doing better. They've taken her off of one of her antibiotics, and are slowly decreasing the amount of fluids they give her, which means her kidneys are starting to function just a little bit better. She is still making do with IVs in her hands/arms, because they haven't wanted to risk the infection that an internal line might cause.
I just wanted to thank all of you again for all of the support you've been giving her. It's just as hard as it's ever been- even harder, in ways, and we always need you more than ever. Thank you.
To the McDonalds- thanks for the Irish Luck basket! The green decorations have been fun for the holiday!
To the McClungs- Thanks as always for your adorable packages! They're always winners.
To the Nolans and Rawlinsons- thank you for always posting your support.
To Melissa- thank you, dear, for spending the weekend with Kim so mom, dad and I could pay attention to Mike. It was hard leaving her, but I know you took good care of her.
Ah, you know how individual thanks are- of course I'm going to leave people out. But I love you all, so much, for what you've been doing for my family. Thank YOU!
And hey- those new wristbands will work great for St. Patrick's Day!
Oh- one more side note. These late posts are almost always done as I'm falling asleep, and usually from my phone. After the first paragraph, it doesn't automatically keep up with where I am typing- so I make a lot of errors. I decided long ago not to let it bother me- and even though I usually notice as I'm posting it... I tend to just let it go. Maybe some day I'll go through and edit them. Until then- I know you love me anyway!
Goodnight! Love, Emily
Monday, March 14, 2011
Ah! I've been so lazy! Fortunately, many of you came to Mike's Homecoming and got updates on Kim in person. To the rest of you- sorry! It has been a crazy week.
Kim has been having a bit of a rough time this past while. Friday we learned that she had a yeast infection growing in her blood, so they needed to remove her central line, as yeast infections tend to cluster around foreign objects like that. Her kidney function has been improving, and her nausea has mostly gone, but she still has mouth sores that make it difficult for her to eat, so they still have her on IV nutrition.
A CT scan showed that most of her organs are looking good, but she does have ovarian cysts which are probably contributing to the abdominal pain she's been having. Alon with bed sores and hemroids, and feet that still haven't quite healed up- she's still in a lot of pain.
Her central line was removed Friday afternoon. She's having to have all of her medications and fluids through IVs that have been placed in both hands (but were later moved a little higher up her arms, much to her relief- the hand IVs really hurt her.)
Today we learned that the doctors aren't seeing any yeast in her blood anymore, but she is still having fevers, so we don't know what else could be going on. They are considering placing a PICC line in her arm tomorrow, but we'll have to are.
For now, she's being kept pretty sedated, but we think she's over-all coming along alright. Her second, double- check bone marrow test is Wednesda. No plans for the transplant or coming home yet, but we are hoping to get there soon.
Thank you all for your support of our family! Seeing so many of you with her wristbands makes us all so happy :). ( If you still need one- let me know!)
Lots of love-
The Nelsons
Kim has been having a bit of a rough time this past while. Friday we learned that she had a yeast infection growing in her blood, so they needed to remove her central line, as yeast infections tend to cluster around foreign objects like that. Her kidney function has been improving, and her nausea has mostly gone, but she still has mouth sores that make it difficult for her to eat, so they still have her on IV nutrition.
A CT scan showed that most of her organs are looking good, but she does have ovarian cysts which are probably contributing to the abdominal pain she's been having. Alon with bed sores and hemroids, and feet that still haven't quite healed up- she's still in a lot of pain.
Her central line was removed Friday afternoon. She's having to have all of her medications and fluids through IVs that have been placed in both hands (but were later moved a little higher up her arms, much to her relief- the hand IVs really hurt her.)
Today we learned that the doctors aren't seeing any yeast in her blood anymore, but she is still having fevers, so we don't know what else could be going on. They are considering placing a PICC line in her arm tomorrow, but we'll have to are.
For now, she's being kept pretty sedated, but we think she's over-all coming along alright. Her second, double- check bone marrow test is Wednesda. No plans for the transplant or coming home yet, but we are hoping to get there soon.
Thank you all for your support of our family! Seeing so many of you with her wristbands makes us all so happy :). ( If you still need one- let me know!)
Lots of love-
The Nelsons
Thursday, March 10, 2011
Wow. The past few days have been a lot of the same old story- Kim's been feeling pretty crummy and is on loads of meds and liquids. Her test on Monday went well- her hip isn't too sore from the marrow draw.
Alright, that was everything I should have told you a day or two ago- now to today. And yes- wow.
Mike is HOME. Dad, mom and I picked him up at the airport around seven, and brought him right here to the hospital. Our family is finally together again. It's such an incredible feeling. Technically, Kim and I are at the hospital still, and Mike went home with our parents, but we were together for about an hour :) Now we just need to get Kim home!
Now, as to Kim's test results. Technically, we got them back today- but the doctors want to wait another week or so and do another aspirate- just to be sure. But... Let's just say things looked good. Now we just need to start healing!
Make sure to come to Mike's hecong this Saturday, if you can. See more details on his blog. I willtry too return ails tomorrow- sorry
I Love you all- what an amazing day! Thanks!
Alright, that was everything I should have told you a day or two ago- now to today. And yes- wow.
Mike is HOME. Dad, mom and I picked him up at the airport around seven, and brought him right here to the hospital. Our family is finally together again. It's such an incredible feeling. Technically, Kim and I are at the hospital still, and Mike went home with our parents, but we were together for about an hour :) Now we just need to get Kim home!
Now, as to Kim's test results. Technically, we got them back today- but the doctors want to wait another week or so and do another aspirate- just to be sure. But... Let's just say things looked good. Now we just need to start healing!
Make sure to come to Mike's hecong this Saturday, if you can. See more details on his blog. I willtry too return ails tomorrow- sorry
I Love you all- what an amazing day! Thanks!
Saturday, March 5, 2011
Oh, poor Kim. She is so miserable. She has just been in souch pain lately, and her nausea is still Terrible. Her blood counts Are coming up a tiny bit, so we're hoping her body will start healing. She's under a hundred pounds now, poor little thing.
Still no news, really. A lot depends on how Monday's test goes.
Thank you all so much-
Emily
Still no news, really. A lot depends on how Monday's test goes.
Thank you all so much-
Emily
Wednesday, March 2, 2011
Next Test witll be Monday!
Funny story for you:
I just spoke with Kim, and she was telling me about her day. The conversation went more or less like this:
Kim: "All I've done today is thrown up! At least ten times! I swear I've never thrown up this much in my whole life put together! At least I've been able to work it out though- I ordered some really great ice cream, and it was so delicious! It didn't even taste all that bad when I threw it right back up. So then I ordrered up some more! I haven't thrown that back up yet, but just thinking about it... urhhhg.... hold on...."
Mom: "Hi, Em. Kim's throwing up again. But how was your day?"
:) For all that she's still feeling so crummy, she is just a little bit better than she was Sunday, so we're grateful for that.
As I said in today's title, we have the date for her next bone marrow aspirate: this Monday. As you know, we really, really need her leukemia count to be under 8%. It was still at 15 after her last test. If it's under 8, they should be going ahead with the transplant round. If it's not, I really don't know what will happen.
So, again, and as always, please pray extra hard for Kim and her upcoming test.
Mike will be home in one week! Are you coming to his homecoming?
eldermikenelson.blogspot.com
I just spoke with Kim, and she was telling me about her day. The conversation went more or less like this:
Kim: "All I've done today is thrown up! At least ten times! I swear I've never thrown up this much in my whole life put together! At least I've been able to work it out though- I ordered some really great ice cream, and it was so delicious! It didn't even taste all that bad when I threw it right back up. So then I ordrered up some more! I haven't thrown that back up yet, but just thinking about it... urhhhg.... hold on...."
Mom: "Hi, Em. Kim's throwing up again. But how was your day?"
:) For all that she's still feeling so crummy, she is just a little bit better than she was Sunday, so we're grateful for that.
As I said in today's title, we have the date for her next bone marrow aspirate: this Monday. As you know, we really, really need her leukemia count to be under 8%. It was still at 15 after her last test. If it's under 8, they should be going ahead with the transplant round. If it's not, I really don't know what will happen.
So, again, and as always, please pray extra hard for Kim and her upcoming test.
Mike will be home in one week! Are you coming to his homecoming?
eldermikenelson.blogspot.com
Monday, February 28, 2011
Hi Guys. I don't really have any News- just more comments on things we already know. (So, no news about coming home, blood counts, or the transplant.)
Although it's really the same old story- nausea, icky mouth, sore feet- it's especially rough right now. She can hardly keep anything down, and her throat hurts so much from the throwing up, and what chemo did to it, that she's in constant pain. They've started her back on IV nutrition, as she's lost so much weight over this past week. She's on so many medications, that she just dozes most of the time. When she is awake, she's miserable. Like I said, it's rough.
What we need are her blood counts to start coming back good, strong, and cancer free- and to start healing her body. Her next bone marrow test really will say zero leukemia, and she'll get to come home for a nice break, and then go back for transplant: finish line!
Please help us pray that she'll make it through this hard time soon.
Thank you everyone who has been signing up for relay. Kim is very excited to see how we'll think of supporting her this year. More news on that coming soon- for now, we just need to get our girl feeling better.
Love, Emily
Although it's really the same old story- nausea, icky mouth, sore feet- it's especially rough right now. She can hardly keep anything down, and her throat hurts so much from the throwing up, and what chemo did to it, that she's in constant pain. They've started her back on IV nutrition, as she's lost so much weight over this past week. She's on so many medications, that she just dozes most of the time. When she is awake, she's miserable. Like I said, it's rough.
What we need are her blood counts to start coming back good, strong, and cancer free- and to start healing her body. Her next bone marrow test really will say zero leukemia, and she'll get to come home for a nice break, and then go back for transplant: finish line!
Please help us pray that she'll make it through this hard time soon.
Thank you everyone who has been signing up for relay. Kim is very excited to see how we'll think of supporting her this year. More news on that coming soon- for now, we just need to get our girl feeling better.
Love, Emily
Wednesday, February 23, 2011
Well, Kim's through her chemo! She's feeling pretty crummy now, as usual- the swelling, burned feet are back, along with the nausea and icky-mouth. We're battling them with the same things- little bites to eat when she can, pain meds, and lavender-milk wraps at night, and ice packs round the clock for her feet.
Still no news regarding anything else- but thanks for hanging in there with us :)
Two weeks til Mike gets home!
Still no news regarding anything else- but thanks for hanging in there with us :)
Two weeks til Mike gets home!
Hi Everyone,
I don't really have anything new to report. Kim is finishing her last doses of chemo today, and we're just playing the "wait and see" game for now.
She's been doing alright with the treatement, considering the fact that it IS chemotherapy- she's sick and doesn't feel like eating anything, and has gotten a little puffy and sore, but she's holding in there.
We don't know if/when they'll want to start her trasnplant round. I don't know yet when they'll want to do another bone marrow aspirate to see how this round of chemo went. I don't know if they will let her come home for a break in between. I'm not much help, am I? :) But we'll let you know as soon as we do what Kim's going to have going on.
Please register for Relay for Life! And start the countdown: Mike will be home in two weeks!
Love you all- Emily
I don't really have anything new to report. Kim is finishing her last doses of chemo today, and we're just playing the "wait and see" game for now.
She's been doing alright with the treatement, considering the fact that it IS chemotherapy- she's sick and doesn't feel like eating anything, and has gotten a little puffy and sore, but she's holding in there.
We don't know if/when they'll want to start her trasnplant round. I don't know yet when they'll want to do another bone marrow aspirate to see how this round of chemo went. I don't know if they will let her come home for a break in between. I'm not much help, am I? :) But we'll let you know as soon as we do what Kim's going to have going on.
Please register for Relay for Life! And start the countdown: Mike will be home in two weeks!
Love you all- Emily
Friday, February 18, 2011
Hi dear friends. I am writing from my phone , in kim's room. I'm sorry to say that it was just preliminary testing that showed her leukemia cells at zero. We got her final results yesterday. She actually does still have 15% of the cancer left. They are starting her on another round of chemo immediately. She is about to get her first dose. They're giving her three different kinds this round. One of them us new, and is generally considered the most aggressive one they use here.
I don't know what the next few days will bring, but I will let you know as soon as I figure things out.
I don't know what the next few days will bring, but I will let you know as soon as I figure things out.
Tuesday, February 15, 2011
Results!!!
We just got the results from Kim's bone marrow aspirate this morning.
She officially IN REMISSION AGAIN! Leukemia count is down to zero- the doctor's can't find a single speck of it left in her body!!
No details yet as to exactly how the next few weeks will go- but she'll for sure get a nice break at home, and then go right into her Transplant Round.
Thank you thank you thank you thank you thank you thank you thank you ALL SO MUCH. It was your prayers that did it!
More soon-
Emily
She officially IN REMISSION AGAIN! Leukemia count is down to zero- the doctor's can't find a single speck of it left in her body!!
No details yet as to exactly how the next few weeks will go- but she'll for sure get a nice break at home, and then go right into her Transplant Round.
Thank you thank you thank you thank you thank you thank you thank you ALL SO MUCH. It was your prayers that did it!
More soon-
Emily
Sunday, February 13, 2011
Okay, guys- this is it. Kim is having her bone marrow aspirate (test) on Monday at one thirty. If she us under eight percent, she gets to go home for a nice break and then come back to get ready for the big transplant round. If she is over eight percent leukemia , then she has to start another round of chemo right away. Right now, Kim doesn't feel like she's got enough left to go through that. So please, please please, keep her in your prayers more than ever this weekend. We need you now more than ever.
Thank you so much-
Emily
Thank you so much-
Emily
Thursday, February 10, 2011
Hi friends- a little bit of bad news, at least for me:
As many of you know, I work at a Community Health Center (we have great programs for anyone without health insurance, and great service for everyone in general- ask me about it if you're interested!) We recently had an interesting case come through, and long story short- Kim's doctors are not going to let me come down to see her, just for her safety, this weekend.
I was just telling you in my last post that Kim would like to see some visitors. This weekend would be a great one, if you're healthy, and you think you can stop by for a visit. She's going to be lonely.
Thanks, as always, Emily
As many of you know, I work at a Community Health Center (we have great programs for anyone without health insurance, and great service for everyone in general- ask me about it if you're interested!) We recently had an interesting case come through, and long story short- Kim's doctors are not going to let me come down to see her, just for her safety, this weekend.
I was just telling you in my last post that Kim would like to see some visitors. This weekend would be a great one, if you're healthy, and you think you can stop by for a visit. She's going to be lonely.
Thanks, as always, Emily
Wednesday, February 9, 2011
Hi Everyone! Kim is still doing okay- mostly just tired today. Dr. Girshman, of Alternative Medecines at PCMC, has been working with Kim a lot lately to get her off of the pain medication she has to take so much. When I called to say goodnight just now, Kim was soaking her feet in a bath of lavender and milk. She's done some accupressure, as I've mentioned, but lately it's mostly been aromatherapy. I think it's all very cool, and keep meaning to get some to try myself.
We want to give a special thanks to our Grandma Marie, for the wonderful package she sent Kim! It was loaded with all sorts of goodies- books, games, comfy socks, and LOVE! I'm very excited to play Family Uno on Sunday. :)
Also, special thanks to the McClungs! They sent Kim some adorable balloons- it's amazing how they cheer up the room! Thank you! (And, thank you for the cow! Did Kim tell you? We've named him C.C.- for Cookies and Cream! He's a pillow favorite.)
And, from me: VERY special thanks to Leslie, Mari, Meliss and Jessica for signing up for the Relay for Life team! Now's the time to get the ball rolling :)
Kim wanted me to thank all of you for being there for her. Thank you for the prayers and support. It means so much to her, knowing she's never alone.
She also wants visitors. She knows she's too tired some times, but there are so many other times that she'd love to see you. It does get a little dull in the hospital with nothing to do but try to grow blood. Not that we're complaining- boring hospital stays are how we like to keep it, but you know what she means. (But only visit if you're very healthy! -That bit is from me.)
We want to give a special thanks to our Grandma Marie, for the wonderful package she sent Kim! It was loaded with all sorts of goodies- books, games, comfy socks, and LOVE! I'm very excited to play Family Uno on Sunday. :)
Also, special thanks to the McClungs! They sent Kim some adorable balloons- it's amazing how they cheer up the room! Thank you! (And, thank you for the cow! Did Kim tell you? We've named him C.C.- for Cookies and Cream! He's a pillow favorite.)
And, from me: VERY special thanks to Leslie, Mari, Meliss and Jessica for signing up for the Relay for Life team! Now's the time to get the ball rolling :)
Kim wanted me to thank all of you for being there for her. Thank you for the prayers and support. It means so much to her, knowing she's never alone.
She also wants visitors. She knows she's too tired some times, but there are so many other times that she'd love to see you. It does get a little dull in the hospital with nothing to do but try to grow blood. Not that we're complaining- boring hospital stays are how we like to keep it, but you know what she means. (But only visit if you're very healthy! -That bit is from me.)
Monday, February 7, 2011
Donor News!
Hi Everyone! I'm very happy to report that I have lots of good news, and as always, lots of favors to ask!
First of all, Kim is doing well. Her feet are feeling a little better, and she's feeling more energetic. She is still having trouble with side effects (no saliva, aching body, dry throat, burning feet, bored out of her mind...) but yes, is feeling as a whole a little bit better.
When Monday rolls around, all of the regular doctors check back in, and we start to get big news! They have narrowed Kim's bone marrow matches down to the lucky one! Apparently, this person is able and willing to save Kim's life. It is so strange to think that he/she is out there, and yet, we can't know anything about them, or even send them a message, until a whole year after the transplant has gone by. (I keep telling Kim that I hope "he's" a tall, dark and handsome, 28ish, International businessman... but really, anyone at all will do ;)
They are also holding on to those two units of Cord blood that were also matches for her, just to use as back up.
Dr. Barnett, her primary Oncologist, also laid out the plan for Kim's near future. She will be getting her next Bone Marrow Aspirate (test) some time next week. If her Leukemia cells have dropped to less that 8% of her total marrow, they'll send her home for a break and then get started on the transplant round (PRAY FOR THAT ONE!) If, however, the Leukemia is still more than 8%, she will have to stay at the hospital and start this round of chemotherapy over again.
Please, please, please pray for us that this round has taken out the majority of her cancer. Each round is harder on her, and we need to get her through this as soon as possible.
Thank you again, as always, so much- we could never do this without you.
Love, Emily
First of all, Kim is doing well. Her feet are feeling a little better, and she's feeling more energetic. She is still having trouble with side effects (no saliva, aching body, dry throat, burning feet, bored out of her mind...) but yes, is feeling as a whole a little bit better.
When Monday rolls around, all of the regular doctors check back in, and we start to get big news! They have narrowed Kim's bone marrow matches down to the lucky one! Apparently, this person is able and willing to save Kim's life. It is so strange to think that he/she is out there, and yet, we can't know anything about them, or even send them a message, until a whole year after the transplant has gone by. (I keep telling Kim that I hope "he's" a tall, dark and handsome, 28ish, International businessman... but really, anyone at all will do ;)
They are also holding on to those two units of Cord blood that were also matches for her, just to use as back up.
Dr. Barnett, her primary Oncologist, also laid out the plan for Kim's near future. She will be getting her next Bone Marrow Aspirate (test) some time next week. If her Leukemia cells have dropped to less that 8% of her total marrow, they'll send her home for a break and then get started on the transplant round (PRAY FOR THAT ONE!) If, however, the Leukemia is still more than 8%, she will have to stay at the hospital and start this round of chemotherapy over again.
Please, please, please pray for us that this round has taken out the majority of her cancer. Each round is harder on her, and we need to get her through this as soon as possible.
Thank you again, as always, so much- we could never do this without you.
Love, Emily
Sunday, February 6, 2011
Relay for Life!
Please register for Kim's Relay for Life team! The event will be April 15th at Utah State University. Our goal is to come together to show our support for Kim and the fight against cancer, and raise a little bit of money for the American Cancer Society in her honor.
Go to this website and search for Kim's team: KEEP RUNNING KIM!
http://relay.acsevents.org/site/TR/RelayForLife/RFLFY11GW?fr_id=30405&pg=entry
I've got new writstbands ordered for this Battle- they should be available in a couple of weeks. I'll let you know! (They're exciting- lime green this time!)
Thank you all, so much!
Go to this website and search for Kim's team: KEEP RUNNING KIM!
http://relay.acsevents.org/site/TR/RelayForLife/RFLFY11GW?fr_id=30405&pg=entry
I've got new writstbands ordered for this Battle- they should be available in a couple of weeks. I'll let you know! (They're exciting- lime green this time!)
Thank you all, so much!
Saturday, February 5, 2011
Hello Adoring Fans of Kim! I bear tidings of great... feet. You wouldn't believe what this last round of Chemo has brought on.
She started this round on Monday, both her first day back to PCMC after her little break at home, and her first day of Chemo. They've had her on a few different kinds, but the main two have been ARA-C, one she's had almost every time- it's rough. And a new one- they call it Cloe. She usually feels feverish and itchy with the ARA-C, and is prone to rashes, so that was to be expected. But Cloe seems to have brought on something all together new-
The feet. As strange as it is, her feet have swelled into puffy little balloons, with aching bones, and skin as red and tender as the worst of sunburns. It's so bad at times, that she can't stand to have them touched, let alone walk on them. We've been keeping ice packs on them 24-7, and giving her pain meds around the clock, just to try managing it. The rest of her body is in reasonably good condition- it's just the feet.
Fortunately, today they feel just a little bit better than yesterday, and as yesterday was the last day of her chemotherapy, we're hoping this means she'll keep feeling better bit by bit.
I have another story to tell you from earlier this week. I'm not really sure how to lead up to it, as I've never written anything like this before.
Kim's life has been one of many miracles, small and large. This week she was able to be a part of one of the most miraculous yet:
Early this week, just after starting chemotherapy again, she had a day of terrible nausea. She threw up several times, and was miserable the rest of the time. This was very strange for her, as she usually never gets sick until after her chemo treatment is already through. The nurse she had that day was spending almost all of her time with Kim, and ended up quite neglecting the other patient she was taking care of.
The day passed, and the other patient, a one year old little boy named Michael, was due for a round of chemo himself. The nurse put it off and put it off, until his mother, Rachel, was very nearly getting upset- it was getting late. Just as the nurse was finally getting ready to start the chemo, nearly two hours past it's scheduled time, the doctor rushed in telling them to stop. They had done some tests and found that the walls of Michael's small intestines were sepparating. If they gave him that chemo, it probably would kill him.
Later, Rachel came by to tell their story to Mom and Kim. She told them that Kim had saved her baby's life.
Later that week, Rachel came by again. Michael had been given a blessing stating that he would be healed, and she wanted us to know that his intestines were better- something that should have taken a long time, and a lot of treatment. He was able to start his chemotherapy again.
I know that blessings like these are brought on by people like you, with your prayers and thoughts and love for Kim, and the others in situations like hers. It's so amazing, the wonderful things I have been able to witness throughout this journey. Thank you all for being there along the way. We need you.
Love Always, Emily
She started this round on Monday, both her first day back to PCMC after her little break at home, and her first day of Chemo. They've had her on a few different kinds, but the main two have been ARA-C, one she's had almost every time- it's rough. And a new one- they call it Cloe. She usually feels feverish and itchy with the ARA-C, and is prone to rashes, so that was to be expected. But Cloe seems to have brought on something all together new-
The feet. As strange as it is, her feet have swelled into puffy little balloons, with aching bones, and skin as red and tender as the worst of sunburns. It's so bad at times, that she can't stand to have them touched, let alone walk on them. We've been keeping ice packs on them 24-7, and giving her pain meds around the clock, just to try managing it. The rest of her body is in reasonably good condition- it's just the feet.
Fortunately, today they feel just a little bit better than yesterday, and as yesterday was the last day of her chemotherapy, we're hoping this means she'll keep feeling better bit by bit.
I have another story to tell you from earlier this week. I'm not really sure how to lead up to it, as I've never written anything like this before.
Kim's life has been one of many miracles, small and large. This week she was able to be a part of one of the most miraculous yet:
Early this week, just after starting chemotherapy again, she had a day of terrible nausea. She threw up several times, and was miserable the rest of the time. This was very strange for her, as she usually never gets sick until after her chemo treatment is already through. The nurse she had that day was spending almost all of her time with Kim, and ended up quite neglecting the other patient she was taking care of.
The day passed, and the other patient, a one year old little boy named Michael, was due for a round of chemo himself. The nurse put it off and put it off, until his mother, Rachel, was very nearly getting upset- it was getting late. Just as the nurse was finally getting ready to start the chemo, nearly two hours past it's scheduled time, the doctor rushed in telling them to stop. They had done some tests and found that the walls of Michael's small intestines were sepparating. If they gave him that chemo, it probably would kill him.
Later, Rachel came by to tell their story to Mom and Kim. She told them that Kim had saved her baby's life.
Later that week, Rachel came by again. Michael had been given a blessing stating that he would be healed, and she wanted us to know that his intestines were better- something that should have taken a long time, and a lot of treatment. He was able to start his chemotherapy again.
I know that blessings like these are brought on by people like you, with your prayers and thoughts and love for Kim, and the others in situations like hers. It's so amazing, the wonderful things I have been able to witness throughout this journey. Thank you all for being there along the way. We need you.
Love Always, Emily
Tuesday, February 1, 2011
Back to PCMC
Hey Everyone-
Kim went back to PCMC yesterday to start her next round of chemotherapy. She's currently in room 4413, but there are rumors going around that one of the large "suites" might be opening up, and she's at the top of the list. (There are a couple of rooms in the ICS Unit that are a little bit bigger than the others. We've yet to get one thus far, but keep hoping!)
Everything has been going very well lately. Kim doesn't seem to have picked up any infections from her time at home, and she's feeling good: ready to plow through Round Two and get on to Transplant Round!
Kim's focus right now is on keeping healthy and positive. She really needs to keep all the weight, energy, and spirit that she can before the big TR. (Transplant Round) It's a doozy. But you know Kim- she can hold her own!
Our upcoming projects:
-Relay for Life 2011 at USU! (Team KEEP RUNNING KIM!)
-Planning Kim's NEW Birthday Party! (The day she gets her bone marrow transplant) and,
-Getting ready for our Brother Mike to get home from his mission! (March 9th!)
Kim went back to PCMC yesterday to start her next round of chemotherapy. She's currently in room 4413, but there are rumors going around that one of the large "suites" might be opening up, and she's at the top of the list. (There are a couple of rooms in the ICS Unit that are a little bit bigger than the others. We've yet to get one thus far, but keep hoping!)
Everything has been going very well lately. Kim doesn't seem to have picked up any infections from her time at home, and she's feeling good: ready to plow through Round Two and get on to Transplant Round!
Kim's focus right now is on keeping healthy and positive. She really needs to keep all the weight, energy, and spirit that she can before the big TR. (Transplant Round) It's a doozy. But you know Kim- she can hold her own!
Our upcoming projects:
-Relay for Life 2011 at USU! (Team KEEP RUNNING KIM!)
-Planning Kim's NEW Birthday Party! (The day she gets her bone marrow transplant) and,
-Getting ready for our Brother Mike to get home from his mission! (March 9th!)
Friday, January 28, 2011
Good news! Kim is still healthy, and has been having a nice time being away from the hospital. There's really not much to say aside from that- what she's been doing hasn't been all that different: watching movies, taking naps, and sending a million text messages- but it makes all the difference in the world to be doing it from home!
We're still planning on her going back to PCMC on Monday, and I'll let you know if anything new comes up!
We're still planning on her going back to PCMC on Monday, and I'll let you know if anything new comes up!
Thursday, January 27, 2011
Yesterday brought bigger news than I was expecting! As it turns out, Kim's bone marrow is still 50% Leukemic cells. Not really the greatest results. This means that the next round of chemo they do will be extra rough, and will start as soon as possible. One of the drugs is quite rare, and has to be shipped in. It won't arrive until Monday, so her doctors told her and mom that they could just go home for a couple of days, even though her counts aren't really that high. They think that a break away from it all will be worth it- if she behaves while at home.
SO- they packed up her room and drove back to Logan yesterday, getting in later last night. She's just planning on relaxing for these few days, and enjoying being home.
If you are considering stopping by to see her, please just keep to the same rules that she has for hospital visits. She's still very vulnerable. But she does love all of you so much, and wishes she didn't have to be so cooped up.
We haven't heard anything new on the bone marrow donor front. We're still waiting for them to decide if one of the five potentials will be a best match for her.
Thanks everyone!!!
SO- they packed up her room and drove back to Logan yesterday, getting in later last night. She's just planning on relaxing for these few days, and enjoying being home.
If you are considering stopping by to see her, please just keep to the same rules that she has for hospital visits. She's still very vulnerable. But she does love all of you so much, and wishes she didn't have to be so cooped up.
We haven't heard anything new on the bone marrow donor front. We're still waiting for them to decide if one of the five potentials will be a best match for her.
Thanks everyone!!!
Monday, January 24, 2011
Bone Marrow Aspirate
Kim had her bone marrow aspirate (test) today. We should have the results some time tomorrow, and then we'll have a good idea as to if Kim will get much of a break before her next round of chemo, and how intense that is going to need to be. (WE'RE PRAYING SHE'S KNOCKED THAT LEUKEMIA RIGHT OUT OF HER SYSTEM!!)
She's been feeling better day by day, and for all that she still has trouble with pain and sleeping, and nausea a bit, we can at least be grateful that she hasn't gotten sick. Still no blood counts coming back, but we're hoping it will be just a few days more.
Tomorrow will be an important update. Thank you all for standing by!
She's been feeling better day by day, and for all that she still has trouble with pain and sleeping, and nausea a bit, we can at least be grateful that she hasn't gotten sick. Still no blood counts coming back, but we're hoping it will be just a few days more.
Tomorrow will be an important update. Thank you all for standing by!
Wednesday, January 19, 2011
Bone Marrow Donors
As I mentioned in the last post, the doctors here at PCMC have found five bone marrow matches for Kim in the registry, and two potential cord matches. Now is when they start to look at the individuals, making sure that one, or any of them, will still be able to be Kim's donor.
We would like to make a special request, of all of you... We've heard that it often happens that a person may no longer be able to donate, either because of health issues, or choice. As Kim only has five matches, it's possible that none of them will go through. So, if you could please pray for the donors- so that they might be able to donate to Kim, and hopefully others who are in need as well.
Kim had a few blood counts yesterday, but none again today. Still, we're hoping that it won't be too much longer before they're up. Her next aspirate (bone marrow test- to see how much of the Leukemia is still left) will be some time next week. We're hoping she might be able to come home for a couple of days after she's recovered most of the way, just to finish the job. However, this is such a critical time for her, and it's important to get to the transplant stage as fast as possible, so they might just try to keep her. (Notice that I said "try"! Our Kim's a tough one to keep down!)
Kim has some fun today learning meditation techniques from an alternate medications doctor at PCMC. Because pain and sleep medications don't really work all that well for her, and she really needs to be limiting the amount of drugs that she takes into her body, she's going to try to learn some tricks. Quite the opposite to her usual Up, Run, Go! attitude!
Thank you all as always- not a day goes by that I don't think of how different all of this would be without your thoughts and prayers.
Much love, Emily
We would like to make a special request, of all of you... We've heard that it often happens that a person may no longer be able to donate, either because of health issues, or choice. As Kim only has five matches, it's possible that none of them will go through. So, if you could please pray for the donors- so that they might be able to donate to Kim, and hopefully others who are in need as well.
Kim had a few blood counts yesterday, but none again today. Still, we're hoping that it won't be too much longer before they're up. Her next aspirate (bone marrow test- to see how much of the Leukemia is still left) will be some time next week. We're hoping she might be able to come home for a couple of days after she's recovered most of the way, just to finish the job. However, this is such a critical time for her, and it's important to get to the transplant stage as fast as possible, so they might just try to keep her. (Notice that I said "try"! Our Kim's a tough one to keep down!)
Kim has some fun today learning meditation techniques from an alternate medications doctor at PCMC. Because pain and sleep medications don't really work all that well for her, and she really needs to be limiting the amount of drugs that she takes into her body, she's going to try to learn some tricks. Quite the opposite to her usual Up, Run, Go! attitude!
Thank you all as always- not a day goes by that I don't think of how different all of this would be without your thoughts and prayers.
Much love, Emily
Sunday, January 16, 2011
Alright, I'm sorry! I've been so caught up in my own selfish time with Kim (at least on the weekends) that I've really started to slack in the blogging department. But don't worry, you really haven't missed Too much:
Kim has been very, very groggy and nauseated for the past couple of weeks. We all knew it was some sort of medication she was getting, or a combination of them, but she needs most of them, and it's just hard to figure out where it's coming from. However, I think we've decided that it might have been from one of the chemos that she had. She's only had this kind once before, and she got really disoriented then, too- but that was also when she ended up in PICU, so we didn't really notice. We're just glad that it finally started to slack off midway through this week, and she's been feeling alright the past couple of days.
Even though her ANC/White blood cells/Immunity is still at zero, her doctor decided that if she is very careful, and wears a mask, she can leave her room when the hospital is most empty in the evenings. She hadn't done much, but lately she's had enough energy to sneak down to the physical therapy department in the Trauma unit, after hours, to do a little bit of a work out. We've also painted some pictures. And taken lots of naps!
We are approaching one month at the hospital (that day will be the 20th.) The good news is that Kim hasn't had any infections yet, or other major complications. We are still waiting for her blood counts to start to recover, and then she will probably get to come home for a little break. (Like last time- a week or so.)
They've decided that they want to do another regular round of chemotherapy before they start her bone marrow transplant. This basically means another round similar to this one, before The Big One.
They have found five potential bone marrow donor matches for Kim, and two cords that would serve as a back up. It's very unusual for someone like her to have so few (a friend of Kim's who is going through a bone marrow transplant as well had thousands of matches) -but we all know Kim is unusual! ;) They're still studying to choose the very best match, but we know for sure that she'll at least have something.
So there we go! It's been a while of waiting and being careful, but we're doing great so far, and things are looking good. Thank you all for being there for us!
Kim has been very, very groggy and nauseated for the past couple of weeks. We all knew it was some sort of medication she was getting, or a combination of them, but she needs most of them, and it's just hard to figure out where it's coming from. However, I think we've decided that it might have been from one of the chemos that she had. She's only had this kind once before, and she got really disoriented then, too- but that was also when she ended up in PICU, so we didn't really notice. We're just glad that it finally started to slack off midway through this week, and she's been feeling alright the past couple of days.
Even though her ANC/White blood cells/Immunity is still at zero, her doctor decided that if she is very careful, and wears a mask, she can leave her room when the hospital is most empty in the evenings. She hadn't done much, but lately she's had enough energy to sneak down to the physical therapy department in the Trauma unit, after hours, to do a little bit of a work out. We've also painted some pictures. And taken lots of naps!
We are approaching one month at the hospital (that day will be the 20th.) The good news is that Kim hasn't had any infections yet, or other major complications. We are still waiting for her blood counts to start to recover, and then she will probably get to come home for a little break. (Like last time- a week or so.)
They've decided that they want to do another regular round of chemotherapy before they start her bone marrow transplant. This basically means another round similar to this one, before The Big One.
They have found five potential bone marrow donor matches for Kim, and two cords that would serve as a back up. It's very unusual for someone like her to have so few (a friend of Kim's who is going through a bone marrow transplant as well had thousands of matches) -but we all know Kim is unusual! ;) They're still studying to choose the very best match, but we know for sure that she'll at least have something.
So there we go! It's been a while of waiting and being careful, but we're doing great so far, and things are looking good. Thank you all for being there for us!
Sunday, January 9, 2011
Wednesday, January 5, 2011
Today was the day! Kim is officially a Baldy again :) Her hair made a rapid nose dive over the past couple days and today she had mom take the shears to her head. Sad to say, those two have not been the most technologically helpful people this week, so I don't have any new pictures for you, but that's what this weekend will be for!
Aside from that, Kim has still been very sick today, and has been kept drugged up for most of the day. Because it's so important for her to keep her weight up, they're doing everything they can to keep nutrition in her body. They've started her on IV nutrients, too- TPN and Lipids. They help.
We haven't heard anything new about her bone marrow transplant. Mostly likely, they will make the decision about her donor when they get the results for the bone marrow test she'll take once her blood counts have recovered. For now, they're all still dropping, so it will most likely be a couple more weeks.
For those of you who are a little new to all of this, I am planning to get a summary of her story up, as I know I tend to jump into the middle of things every time I post. Thank you all, anyway, for the love and support. She's a trooper, but can't do it without all of you!
Aside from that, Kim has still been very sick today, and has been kept drugged up for most of the day. Because it's so important for her to keep her weight up, they're doing everything they can to keep nutrition in her body. They've started her on IV nutrients, too- TPN and Lipids. They help.
We haven't heard anything new about her bone marrow transplant. Mostly likely, they will make the decision about her donor when they get the results for the bone marrow test she'll take once her blood counts have recovered. For now, they're all still dropping, so it will most likely be a couple more weeks.
For those of you who are a little new to all of this, I am planning to get a summary of her story up, as I know I tend to jump into the middle of things every time I post. Thank you all, anyway, for the love and support. She's a trooper, but can't do it without all of you!
Monday, January 3, 2011
You know what they say about excuses- they're like feet: they all stink!
But anyway, this past week Kim has really been struggling with nausea. It hit her hard just a day or two after she finished her last dose of chemo. They are especially anxious for her to maintain her weight because of how hard the marrow transplant is on a persons body. Hopefully, it won't last much longer. It's already hard for her to eat, as her tastebuds are chemo- fried.
Yesterday Kim started to shed a bit more than usual, and today is officially the beginning of the end for her hair. We were hoping to do something crazy to it before shaving it, so hopefully we'll have something fun to show soon.
Right now we are still waiting for Kim's counts to bottom out. Her ANC/ immunity is at zero, but her blasts (cancer cells) are still dropping. If she does well, then she might get to home home for the last few days of recovery, before going back to see how much cancer is still in her bone marrow. Most likely, there will still be some, and she will do a second, similar round of chemo and recovery. If, or when, her cancer count is at zero (remission) she will start her bone marrow transplant.
Kim is okay to have visitors, if they are healthy and over 14. She doesn't always feel up for it, so please check with us first, and try to keep visits shorter than longer. I sound so strict! But she really does love distractions when she's feeling well enough to be bored :)
Special thanks to friends whose Christmas presents got to Kim this weekend! Books, a sweatshirt, DVDs, and a PillowPet were all great ideas! Also, a picture of the great posters so many of you signed will be coming up soon.
Special thanks also to Uncle Mic and Aunt Leslie for the fun game!
And of course, thanks you all as always for the love, thoughts and prayers!
But anyway, this past week Kim has really been struggling with nausea. It hit her hard just a day or two after she finished her last dose of chemo. They are especially anxious for her to maintain her weight because of how hard the marrow transplant is on a persons body. Hopefully, it won't last much longer. It's already hard for her to eat, as her tastebuds are chemo- fried.
Yesterday Kim started to shed a bit more than usual, and today is officially the beginning of the end for her hair. We were hoping to do something crazy to it before shaving it, so hopefully we'll have something fun to show soon.
Right now we are still waiting for Kim's counts to bottom out. Her ANC/ immunity is at zero, but her blasts (cancer cells) are still dropping. If she does well, then she might get to home home for the last few days of recovery, before going back to see how much cancer is still in her bone marrow. Most likely, there will still be some, and she will do a second, similar round of chemo and recovery. If, or when, her cancer count is at zero (remission) she will start her bone marrow transplant.
Kim is okay to have visitors, if they are healthy and over 14. She doesn't always feel up for it, so please check with us first, and try to keep visits shorter than longer. I sound so strict! But she really does love distractions when she's feeling well enough to be bored :)
Special thanks to friends whose Christmas presents got to Kim this weekend! Books, a sweatshirt, DVDs, and a PillowPet were all great ideas! Also, a picture of the great posters so many of you signed will be coming up soon.
Special thanks also to Uncle Mic and Aunt Leslie for the fun game!
And of course, thanks you all as always for the love, thoughts and prayers!
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