Wednesday, September 30, 2009
Sunday, September 27, 2009
Though the C-Diff (see last post) stomach bug that Kim has officially takes two weeks to treat (that's how I know she will be in the hospital for at least that long) her stomach doesn't hurt nearly so much. She had extremely painful cramps that even morphine wouldn't clear up for her. All they could really do is give her things that made her sleepy, so she wouldn't have to be awake for it.
Also, this weekend she started to get a slightly runny nose, and the doctors have been worried she might have somehow picked up a virus. But, she tested negative for that, thank goodness! Maybe she's just developing an alergy for hospitals ;)
Overall, I think she is through the worst of the chemo effects now, and will hopefully only feel better over the next couple of weeks until she is able to come home again for a while. (Lets hope that the marrow test she'll have before she goes back for round three shows her cancer percent to be at zero through and through!)
Thursday, September 24, 2009
Crazy, huh? Anyway, Kim is especially vulnerable right now, and really isn't feeling very well, but we're hoping that won't last long. She should be able to come home in about two more weeks. Until then, she's really glad to hear from you (you can still send emails through the PCMS link- look to the info on right of screen) and if she's feeling well, would love company. Please check with her/us first to be sure that she's up for it that day. Thanks everyone!
Sunday, September 20, 2009
Dad's perspective (Sunday 20Sep09)
I get to take my turn this weekend with Kim, I've actually been looking forward to this, I enjoy my time here with Kim. I got here Saturday afternoon as I was busy getting things done around the house, (computer maintenance, laundry, vacuuming, dishes, moping, yard work, etc. etc.) I didn’t want the house to look to bad when Julie got back.
Kim is continuing to do well, the only problem I can see is some pain with jaw and head aches. This round of chemo has been much less severe than the 1st round. Her ANC blood count is now zero, the chemo has done its job killing out her cells in the bone marrow, now back to the re-building faze. So her immunity is back to nothing and she is confined to her room. Kim and I watched a few videos Saturday evening. Sunday morning, I hiked for an hour on the Bonneville Lake Shore Line Trail, then took a short-cut coming back coming down the steep mountain slope and over the “U”. The “U” is made from a big slap of cement with embedded lights. Sunday I attended the sacrament service provided here at PCMC, and then the branch brought in the Sacrament and lesson to Kim. Kim and I have had a fun afternoon visiting and reminiscing about how good our lives have been. Kim got a special visit from a beautiful dog, a King Charles Cavalier. He was the most friendly-loving dog you could imagine. I want one now, what a beautiful dog. Thanks all for your food, love and prayers in our behalf. (Ward members have been bringing in food for Emily and I at home while Julie and Kim are at PCMC)
Saturday, September 19, 2009
It is melting out her ears. So, when she comes back, just be sure to use small words...") Of course, the effects of chemo usually start to take place after she's through with the treatment. But it's nice that it hasn't happened yet.
Here is a picture of her taking some guitar lessons from the Music Therapist here at Primary Childrens. Kim's been developing her guitar skills over the past couple of years, and is planning to really get good over the next few months.
Wednesday, September 16, 2009
Saturday, September 12, 2009
In this next round of treatment, she's now trying to get down to 0% in and out. Then she'll just need a couple more months of treatment to ensure that she is really in recession- and it will be back to life as usual for Kim!
I know things have been working so well for her because of all of the support and prayers from all of you. Thank you!
Now, just to get through these next few months... Blue wristband anybody?
She is going to be in this room for about a week- probably. Yesterday was her first day of ten days of chemo again, and she should still have high enough counts until they move her up there. (They aren't as picky down here with cleanliness and all- you don't have to be checked in, and her room isn't air-pressurized, etc.)
She is of course already twiddling her thumbs. I'm sort of torn between being that that she feels well enough to be bored- it might not be long before the drugs start making her sick again. Still, if any of you could drop by to visit, or want to send an email or something, she'd really appreciate the distraction. She is now in the Children's Surgical Unit (CSU) Room 3070. (By the way- a couple of you have asked me what Kim might like to keep her entertained... the best things I can still think of are an iTunes giftcard, stationary and maybe some snacks- she's still got her appetite.) Thanks!!
Friday, September 11, 2009
Interestingly enough, the ImmunoCompromised Services Ward at PCMC, where she pretty much dwells, is "booked full" for this weekend, so they're going to have her down a floor on children's surgery for a couple of days. Hopefully a few will clear up in that time- they usually give the AMC patient's their pick of room, when they can (because they end up staying for so long. Most people are only in for a couple of days, week at the most.)
When she does move into her room in the ICS, she's decided that she wants a Beach/Luau/Pirate sort of decorating theme (we're probably going to do something different for each visit, just to keep things a little more interesting.) We'll let you know how that works out.
I won't lie... Kim is really kind of bummed about going back to the hospital. She knows she needs to get on with her treatment, but it's really hard for her to stay cooped up there. Also, the uncertainty about the next step in her treatment (and how well things have been working so far) really has all of us a little worried. But really, I know she will be just fine... Kim is amazing. :) And thank you all for helping her through this!
Tuesday, September 8, 2009
The marrow test is very important because though her blood is showing no leukemia (which is great,) it could still be in the marrow- where blood is produced. This is the thing I keep talking about in regards to her "progress" and whether or not she will need a marrow transplant. Less than 5% and she won't at all, less than 15% they would only do it if she had a sibling match (which she doesn't) and over 15% is pretty bad- they will pull a donor from the national registry for her. (Once again, that is just how they work. If you are interested, please go to www.marrow.org )
Her regular blood test from last week (the one we do from home and our nurse here sends to the hospital) showed Kim with some great results. Her ANC, or general immunity, was all the way up to 700. (She was usually around 200. Over 500 is great- not even officially immuno-compromised anymore, and they wanted her at about 750 before they would start chemo again.) She was really excited about that- it meant she got to go off of the antibiotic that we had to administer every 8 hours into her IV line. Now she's just on pills. Also, it wasn't so dangerous for her to see people.
However, this week's blood test, today, showed a pretty dramatic drop back to 400. We don't know if they will push her hospital admit date back again, or if they will just have her come in. A LOT will depend on tomorrow's marrow test.
I want to thank all of you once more for your thoughts and prayers. Things are still really hard for Kim, especially now in planning to go back to the hospital, and as she is starting to feel weaker (not getting transfusions, getting that shot of chemo last week, and general dropping counts and too-strenuous activity. Naughty girl.) So thank you all, for helping to take care of us.
I wanted to say a special thank you to Kim's and my student ward. They held a special fast for her this last Sunday. Though they didn't have long to know her before all of this took place in her life, they have been amazingly supportive. Thank you all so much!